Although CADASIL is a rare disease, it's important for those who are affected to know that they are not enduring alone. We strive to bring greater awareness and build a supportive community for patients and their families on their journey with CADASIL — and you can help by sharing your story.
Whether you are a patient, caregiver, family member, or friend, your experience is valuable. Every story shared helps others feel less isolated, educates the medical community, and drives momentum toward a cure.
✅ Thank you for sharing!
We've received your story and will review it shortly. If we have any questions, we'll reach out using the contact information you provided. Stories that are approved may be featured on the cureCADASIL Patient Stories page.
Here are a few voices from our community. Read all patient stories →
Living with CADASIL has changed how I see time. Every good day is a gift. Connecting with others through cureCADASIL helped me realize I'm not alone in this fight.
As a caregiver for my husband, I desperately needed a community that understood what we were going through. Sharing our story was one of the most healing things we've done.
When my mother was diagnosed, we had never heard of CADASIL. Finding cureCADASIL and reading others' stories gave us hope and helped us ask better questions of her doctors.