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Join the cureCADASIL Patient Registry  —  Your participation directly advances CADASIL research.  Click here to Join Today → Join the cureCADASIL Patient Registry  —  Your participation directly advances CADASIL research.  Click here to Join Today → Join the cureCADASIL Patient Registry  —  Your participation directly advances CADASIL research.  Click here to Join Today →
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Rare Disease Research & Advocacy

Uniting patients, researchers, and clinicians to find a cure for CADASIL

cureCADASIL is an all-volunteer nonprofit advancing research, awareness, and support for those living with CADASIL — a rare genetic disorder affecting the brain's small blood vessels.

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As an all-volunteer nonprofit, every dollar you give goes directly toward advancing research and supporting patients

CADASIL is a rare genetic condition affecting the brain's small blood vessels, leading to strokes, migraines, and dementia. cureCADASIL funds the research that brings us closer to treatments and a cure.

Research We Support

All research
Active Study

CADASIL Consortium Natural History Study

A multi-site study tracking CADASIL progression to inform future clinical trials and treatment development.

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CZI-Funded

Chan Zuckerberg Initiative CADASIL Study

Patient-partnered collaboration led by Dr. Fanny Elahi at Icahn School of Medicine at Mount Sinai.

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Patient Registry

cureCADASIL Patient Registry

Join the registry to help researchers understand CADASIL better and match patients with clinical studies.

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NIH Study

NIH/NHLBI CADASIL Natural History Study

Led by Elisa Ferrante, PhD at the NIH — seeking CADASIL patients to participate in groundbreaking research.

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Join the cureCADASIL Patient Registry

The patient registry is one of the most important tools we have to accelerate research. By joining, you help researchers understand CADASIL better, and you may be matched with clinical studies that need participants like you.

Join the Registry