cureCADASIL has gathered this information to offer all those touched by CADASIL support, resources, and opportunities to connect with others.
CADASIL is a rare, inherited form of cerebrovascular disease that occurs when the thickening of small blood vessel walls in the brain's white matter blocks the flow of blood to the brain. cureCADASIL has gathered this information to offer all those touched by CADASIL support, resources, and opportunities to connect with others. We invite you to contact us with any questions.
Agents for individuals with CADASIL to avoid, if possible. Always discuss with your physician:
Be sure to share your CADASIL diagnosis with your surgical care team. It is important for CADASIL patients under analgesia to maintain hemodynamic stability leading to adequate cerebral perfusion. This is key to avoid an increase in the effects of the chronic arteriopathy people with CADASIL sustain.
Our information comes from the National Library of Medicine.
The views expressed by others on Facebook, Instagram, LinkedIn, X (formerly Twitter) and other sites do not necessarily reflect the views of cureCADASIL.
You can connect with our community via our social media pages:
Additionally, you can connect with the following Facebook groups. Please keep in mind that these groups are independent, and cureCADASIL does not operate or monitor them.
Open, public group for anyone interested in learning more about CADASIL for any reason. People outside the group can see the members and posts.
Closed group for anyone touched by CADASIL: patients, families, friends, caregivers, medical professionals, students, and others. People outside the group can see the members in it but cannot see posts unless they are also a member.
Private group for diagnosed CADASIL patients only. No one outside the group can see this page, your membership status, or your posts.
Contact Heather Chepko-Albertson for membership: vchepko@gmail.com
This group is a place where people who love someone with CADASIL can come and connect with others who also love and care for someone with CADASIL. The community is mostly spouses and partners. Patients and family members who are at risk of having CADASIL are asked to join another private group such as CADASIL-ians.
Closed group for anyone who has a biological family member with a CADASIL diagnosis but has not yet been tested personally.
No diagnosed patients are allowed in this group so that members can talk freely about their options and opinions regarding testing — or not testing.