2026 cureCADASIL Patient-Investigator Meeting

As part of our ongoing effort to promote Communication, Advocacy, Research, and Education, cureCADASIL will host a half-day Patient-Investigator Meeting held in conjunction with the United Leukodystrophy Foundation (ULF) Scientific Symposium and Family Conference.

We invite CADASIL patients, families, friends, and caregivers to join us to learn about the recent progress being made toward CADASIL therapeutics, and updates on the research studies actively recruiting volunteers that will help get us there.

There will be opportunities to talk with our clinicians and researchers, and we encourage everyone to ask questions about CADASIL and the progress toward therapeutics in a welcoming, informal setting.

• Individuals living with CADASIL
• Family members
• Friends & support networks
• Caregivers
• CADASIL clinicians & researchers

Come meet your CADASIL community! The Patient-Investigator Meeting will take place on the second day of the ULF Family Conference, with informative talks by leaders at cureCADASIL and CADASIL research investigators.

Registration covers entry to the event and eight (8) meals at the venue. Attendees are responsible for securing their hotel room(s) and making their own travel arrangements.

Hilton Chicago/Oak Brook Hills Resort & Conference Center
3500 Midwest Rd, Oak Brook, IL 60523

Upon registering for the event, you will receive an email confirmation with details for booking your hotel stay. The ULF room block is limited and on a first-come, first-served basis. Last day to reserve: June 1, 2026.

An annual event where affected families can access the world's top Leukodystrophy physicians and researchers outside of the restrictions of insurance and the hospital setting. Held over two days, the Conference aims to provide the latest scientific information to keep families informed on advances in the field and guide families on topics that will improve their overall quality of life while living with a leukodystrophy.

The Conference is geared toward the whole family: affected individuals, parents and caregivers, spouses, siblings, extended family, friends, and anyone in their support network.