Whether you join a study, donate, ride, fundraise, or simply share your story — every action you take brings the CADASIL community closer to treatments and a cure.
Join a StudyOur Impact Together
Participate in Research
Patient participation is the single most important thing you can do to accelerate research. These studies need you — patients, caregivers, family members, and healthy volunteers.
This landmark multi-site study is tracking how CADASIL progresses over time — and it cannot succeed without you. Data collected directly informs future clinical trials and is central to cureCADASIL's mission. This study is actively enrolling patients now.
Supported in part by the Chan Zuckerberg Initiative Patient-Partnered Collaborations grant.
Blood samples and brief assessments needed from CADASIL patients and healthy volunteers (family, friends). Led by Dr. Fanny Elahi at Icahn School of Medicine at Mount Sinai.
Volunteer nowA multi-site study tracking CADASIL progression over time to build the foundation for future clinical trials and treatment development.
Learn more & joinLed by Elisa Ferrante, PhD at the National Institutes of Health — seeking CADASIL patients to participate in groundbreaking federally funded research.
ParticipateSee all currently active CADASIL research studies seeking participants. Find the right fit for you or a loved one.
View all studiesA comprehensive overview of all research studies associated with cureCADASIL — including eligibility details and how to sign up.
View overviewThe patient registry helps researchers understand CADASIL better and match patients with clinical studies that need participants like you.
Join the registrySignature Annual Event
Our annual Patient-Investigator Meeting is one of the most important events of the year — bringing patients, caregivers, and leading researchers together in person to connect, share findings, and shape the future of CADASIL research.
Support the Mission
cureCADASIL is 100% volunteer-run. Every dollar goes directly to research, patient resources, and advocacy. Give in the way that works best for you.
Make an immediate impact with a single gift of any amount.
📈Donating appreciated stock may offer significant tax advantages.
🤝Double your impact — check if your employer matches donations.
📜Leave a lasting legacy by including cureCADASIL in your estate plans.
➕See all donation options and find the right fit for your situation.
Annual Fundraising Event
Penn Medicine's annual fundraising event for rare disease research. Ride and raise money that directly funds CADASIL breakthroughs.
Create a team, set a fundraising goal, and ride. Every dollar raised goes toward research that brings us closer to treatments and a cure. Individuals, families, and companies are all welcome.
Join the Ride Ride History