A CADASIL diagnosis can feel overwhelming. We have gathered everything you need in one place — to help you understand the disease, find the right specialists, and connect with others who understand.
Find What You NeedStart Here
Whether you have just received a diagnosis or have been living with CADASIL for years, these resources will help.
Learn about CADASIL — what it is, how it affects the brain's small blood vessels, and what to expect.
Learn moreUnderstand how CADASIL is diagnosed, including genetic testing, MRI imaging, and what results mean.
Learn moreAnswers to the most common questions patients and families ask after a CADASIL diagnosis.
Read FAQsFinding Care
CADASIL is rare — not every neurologist has experience with it. These tools help you find care and information.
Find neurologists and specialists who have experience diagnosing and treating CADASIL.
Search the directoryA printable one-page handout — useful to share with your care team or family members.
Download PDFRecorded webcasts featuring medical experts discussing CADASIL care and symptom management.
Watch webcastsStay up to date with upcoming events, webinars, and patient meetings.
View calendarWatch recorded webinars featuring researchers, clinicians, and patient advocates discussing CADASIL.
View webinarsCommunity & Connection
Connecting with others who understand CADASIL can make an enormous difference.
Find support groups, online communities, and resources to connect with others living with CADASIL.
Find supportRead first-hand accounts from people living with CADASIL — their journeys, challenges, and hope.
Read storiesStay informed with the latest news, announcements, and events from the CADASIL community.
Read news